The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a leading funder of research into bone marrow failure diseases in Canada. Our volunteer-run organization supports patients and caregivers across the country who are living with aplastic anemia, myelodysplastic syndrome (also called MDS or myelodysplasia) and paroxysmal nocturnal hemoglobinuria (PNH).
Exciting New Initiative
Make sure your voice is heard in deciding the Top 10 research priorities for MDS research in Canada. Please complete the survey found at http://www.ohri.ca/mdspriorities
Are you interested in participating in a study for MDS patients?
The MDS Manager™ is a health and life management mobile health application tailored for patients and caregivers living with MDS. The app is intended to assist patients living with MDS actively participate in their own care by providing tools to track information related to their health.
The MDS Foundation is looking for participants to download and use the app, then provide feedback on the application.
Click for more information / detailed outline of the study click here.
National Office Has Moved
2201 King Road, Unit #4, King City, ON L7B 1G2
Phone numbers and email will remain the same:
905-780-0698 OR 1-888-840-0039
firstname.lastname@example.org OR email@example.com
New AAMAC Brochure
AAMAC has a new Brochure. Click here to download a copy
Patient Support Meetings
AAMAC holds FREE patient support meetings across Canada.
We have meetings in Ottawa, London, Victoria, Edmonton, Vancouver, and Toronto this fall. Click to find a meeting near you!
Do you have MDS and are interested in participating in a clinical trial?
Please click to see if you qualify. If you feel that you qualify, please print the clinical trial information and discuss with your oncologist/hematologist.
Presently the trial is being conducted at: Juravinski Cancer Centre at Hamilton Health Sciences Centre, Princess Margaret Hospital and Odette Cancer Centre at Sunnybrook Hospital.