Research :: Clinical Trials

Bone marrow failure patients may be able to access new treatments through clinical trials.

Clinical trials are sponsored or funded by a variety of organizations or individuals such as physicians, medical institutions, foundations, voluntary groups and pharmaceutical companies. In addition, federal agencies, such as Health Canada, may also sponsor or fund clinical trials.

To find out more about clinical trials, or to participate in a clinical trial please speak to your hamatologist. You doctor can tell you if you are eligible for a particular trial and explain the potential risks and benefits so that you can decide if you're interested or not.

For general information about clinical trials, ask AAMAC for a free booklet.

Some information about specific clinical trials is available through links including the following websites.

• National Cancer Institute of Canada - Clinical Trials Group
     Listing of Canadian clinical trials sponsored by NCIC - CTG. Site is intended for researchers.
• Ottawa Hospital Research Institute
     The CLSG is comprised of many individuals and institutions dedicated to studying leukemia and blood related cancers.
• Ontario Institute for Cancer Research
     The OICR helps patents in Ontario locate clinical trials.
• National Cancer Institute (US) - Clinical Trials
     Searchable database of clinical trials in the US.
• PubMed Databases
     PubMed is a service of the U.S. National Library of Medicine that includes over 17 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950s.
• Current Oncology
     Current Oncology is a Canadian based and internationally distributed journal.
• National Institutes of Health (NIH)
     The Maryland-based NIH treats patients from around the world, including Canadians. Aplastic anemia, MDS and PNH patients interested in participating in NIH clinical studies can contact its Patient Recruitment and Public Liaison Office for details, 1-800-411-1222. There is no cost for qualifying patients to participate and, in some cases, travel compensation is available. General information about NIH studies and a searchable list of studies is at clinicalstudies.info.nih.gove It has a searchable database of U.S. federally-funded studies around the world at www.clinicaltrials.gov. A map makes it easy to find participating Canadian centres.
• IFPMA Clinical Trials Portal
     A searchable database created by the International Federation of Pharmaceutical Manufacturers & Associations, a global non-profit NGO representing 25 international companies and 44 national and regional industry associations involved in the research-based pharmaceutical, biotech and vaccine sectors. Its Clinical Trials Portal, including its privacy policy, are governed by the IFPMA Statutes under Swiss law. Canadian trials can be found without joining.